Showing posts with label ITP. Show all posts
Showing posts with label ITP. Show all posts

Sunday, 7 July 2019

Restart


I've decided to start sharing things on Facebook again (ie Instagram photos) but trying to generally keep it to positive items. If Facebook decide to ban me again there is nothing I can do, there is no option to contest a ban, but it's their club.

This weekend has been varied and busy, yesterday was at Sarah's birthday gathering in North Shields and then I got a friend request from a niece who I have not seen since I was hospitalised with my first bout of ITP in the mid eighties, and though my timeline is gonna look very sparse isn't it. One of the problems is that complaints , bad news and rumour spreads like wildfire while good news is seldom shared but it makes people it touched feel better and if I can do that to one person then it's worth doing.

Today I was thinking I needed to do something, but was feeling a little lethargic , but mowed the lawn, then caught an angry bee in the bedroom (well it was angry in the tube) , but I let it out the window and it went off at some speed.

This week I intend to see a lot of friends including Krista at Kota who I've not seen and Claire at Glamorous Owl who I manage to keep missing, and whoever happens to be about at RPM and Snackwallah and if the queues are low I may try Acropolis another addition to the Grainger Market.

Although I have been feeling apathetic and lethargic I'm obviously not as I've done a lot and have plans to do more. Sometimes you just have to do things and then that makes you feel better.

I was originally going to include Monty Python's "Eric The Half A Bee" (which you can listen to on Amazon or here) but the decided that " Flight of The Bumble Bee" from Tsar Sultan by  Rimsky Korsakov would be more appropriate with this animation. Remember Bees are important to the survival of the human race so always ensure you look out for them, they will only sting you if they have no other option , as it kills them and could very well kill you.

Look after the bees, without their pollination work , plants would not grow and we would very soon be starving.

With that thought have a great Sunday

Tuesday, 21 August 2018

I Don't Want


I was thinking of a maybe writing a poem that started:

"I don't want coffee
 I don't want tea
 I don't want alcohol
 I don't want soup ..."

Then I thought I couldn't really stretch it out any further.

I never understood the phrase "I need a drink" refering to alcohol. I've only ever needed a drink when I have been thirsty. I understand also, the need for stimulation so coffee and other caffeine based stimulantscan be beneficial.

Most alcohol tastes attrocious, though I did acquire a taste for Guinnesswhen I was in hospital recovering from ITP in the mid eighties, and the odd alcoholic drink has been pleasant, I still love the smell of Southern Comfort.

Flavoured Ciders are the new alcopops, Cider is Apple flavoured not berry or mango or whatever. They are very easy to drink though and I also used to like drinking Cider, it was usually quite refreshing.

I don't mind Diet Coke and often use it for a caffeine fix but am well aware of the damage Aspartame can do, so if I do indulge it's generally two 500ml bottles a day, or maybe two 330 ml cans. It does surprise me that a 500ml bottle is classed as two servings.

So as I've been on about drink what about The Dubliners' "Seven Drunken Nights"

Sunday, 9 October 2016

A Not Positive Post


I normally like to be positive and say good things, but at the moment I am suffering from 'flu' like symptoms, dripping nose , headache, sore throat , and tomorrow I go for my 'flu' jab. My only worry is that this might kick off ITP which has not hit me since the millennium. I'm also running a temperature. I feel like I have been kicked all over my body and all I have done today (apart from a lot of blog posts) is walk to Aldi and back (about 3 miles round trip) to get fruit and porridge for work.

So I am taking paracetamol and chocolate and I will beat this. Tomorrow is a 6 am start and I will be in work. I don't let these things beat me. Admittedly last time I had 'flu' I lost some weight and managed to work from home. The fact is barring time off for hospital operations I've forgotten how to call in sick, that's real, I don't think I have had a sick day since I left SSS in 2002 and then it was 'flu' followed by ITP followed by full blown diabetes which wasn't diagnosed for about a year resulting in me having a lot of time off.

Anyway it's reasonably under control now and I suppose I just don't like feeling physically run down. I am sure I will be fine in a few days

So what song should we have, at first I was going to choose something appropriate but I've decided to go with John Cale's "Bamboo Floor" which I love it and it makes me feel good. And when you don't feel good you need to do something to make you feel good and I am going to listen to that and then go to bed.

Sleep well my lovely friends, see you tomorrow.

Saturday, 8 August 2015

The Dangers of Letting Me Make Porridge


I am diabetic , you all know that. I treat it very casually , you all know that. I do what I'm supposed to do you all know that, and the fact I am still here is testament to my general life regime. The NHS has been brilliant in their support of me, with some superb support from across the spectrum , especially my brilliant surgery , Thornfield Medical Group, who I would recommend unreservedly to anybody and NUTH Hospitals who I have both worked for and been treated by over the last few years.

You get the odd well meaning pedant , like the nurse who told me I had to live off carrots and celery, and the nurses and doctors who keep banging about me getting out of a car and sitting in the passenger if I have a hypo while driving. As I diabetic I have to check my blood sugar levels at least every two hours when driving , and I always do this before getting behind the wheel. If the blood sugar was low I would not get in that car, and the day I have a hypo while driving is the day I give up driving. But as I bang on about the odd pedant I have to tell you about the nurse who brilliantly analogised the benefits of Omega 3 Oil as a brillo pad for your veins and arteries (everyone and I mean EVERYONE) should take Omega 3, the brilliant consultant who , although trialling me on a liver drug which resulted in identifying my cirrhosis (which means I can take extra care of myself  in that area) , who also noticed muscle wastage in my left hand which I had lost the horizontal use of, eventually kicking of some tests that discovered a weird trap nerve carpal tunnel syndrome combination that has resulted in a 90% restoration of the functionality of my left hand, we original thought it may have been a TIA or a stroke (which I may have had around the turn of the century when I got hit by ITP).

But as usual I've gone sort of off subject before I've started, but it's really that porridge is the best breakfast anyone can have and it's particularly good for diabetics. It is one of the few foods you can buy that does have sugar as one of it's ingredients (most other cereals have loads) , although the sachets and quick porridge brands have loads of added sugar., just go with a box of Quaker Oats and you can't go wrong (though I'm on Aldi's stuff at the moment). Anyway the way I make porridge is half a cup of  dry porridge oats , a cup of skimmed milk , then put in a pan and stir together and but on the hob on the lowest heat and come back when you are ready to eat (at least 30 minutes) , add some fruit for taste , chopped apple , banana, raisins or sultanas , and you have a perfect start to the day. After that you DO NOT feel like snacking at all , it's very slow release, Perfect.

Porridge has many forms
And now the dangers..... I was once working from home , put the porridge on about 7am and the started work. I was so engrossed in my work that I forgot about the porridge until a cooking smell wafted upstairs that I noticed about 11:30 am. Amazingly because of the low heat, adding another cup of skimmed milk and stirring it it resulted in a great breakfast ... at dinnertime.

Then yesterday ,I had porridge for breakfast , but came home to find I had forgotten to switch off the hob , so it had been on all day, but luckily only on the low heat which means you don't see a red glow  when you take the pan off, so that didn't do my energy conservation much good.



Anyway today I'm going to see Ash with I used to soundtrack my YouTube video that I did when I took part in Lighting Hadrian's Wall which I've include with this even though the only connection is me. Have a great day, I'm going to the Chase Park Festival with my girls , and friends and their families (who are all girls!)  so you enjoy yourself , I'm gonna enjoy mine

Sunday, 17 August 2014

Never Stop



Never Stop Having Fun
Well the last two weeks and the next two weeks for me have been and will be almost non stop. This is not a bad thing although time flies by and disappears as you try and fit everything in. Due to holidays at work we've only had half a team in, but everyone's working extra hard to make sure all runs smoothly and it's actually a pleasure to be in working with the girls and guys, who are absolutely excellent,  supportive with problems and helpful whenever you need them.

There's things we need to do before the bank holiday and I have a day and a half in hospital in the middle of it (tomorrow and Tuesday), I could have done without the overnight stay which they say is because of the ITP but they are just covering themselves and not too arsey so I'll go along with it. As I continually say the NHS is brilliant and hopefully I'll be able to play the guitar properly after the op, which would be amazing as I've never been able to play it before.

Also I am to blame for some of this time congestion as I've also fit in gigs by the Star Spangled Chestwigs, Penetration , Culture (tonight) and Bad Pollyanna (on Friday), so the latish nights are my own fault really, but wouldn't miss them for the world.

And this si one of the things about having fun and being positive, life is much better when you do things , and even better when you do things you enjoy , and even better when you do things you enjoy with friends and people you like like and love. Like I was out seeing friends on Friday and that was fantastic Paul , Fiona , Sarah , Colin  and Graham are fantastic company any day of the week, and that's just five people I'm lucky enough to have in my life.

Today I still have lots to do, but the sun is shining and the wind is blowing but that is fine, no rain at the moment. I know this week I will see many more friends, and have lots of fun , and have the odd moment where I think "I need to sleep" , but really I'd rather be doing something and enjoying myself.

The title is taken from and Echo and the Bunnymen track, so have a brilliant day everybody, my weekend is nowhere near finished and I hope yours isn't either , wherever in the world you are. Keep on smiling

Friday, 8 August 2014

A Lot of Music , Hospitals and Liverpool




This week I've been to two gigs , seen some old friends, met some new ones,  seen four bands , The Star Spangled Chestwigs, Toxic , Go Go Midgets and Penetration and had a check up at the hospital before my operation, and annoying they want me to go in the day before my op and stay overnight to check my platelet levels.

Anyway on the player is Go Go Midgets "Beneath The Valley of the UltraMidgets"  which they gave away last night free at The Three Tuns, and very good it is too.. If you check out their Facebook Page there's a lot of free downloads to enjoy.

Was discussing the best songs about Liverpool last night, so I've included mine and John Peel's favourite, the magnificent "Heart As Big As Liverpool" composed by Pete Wylie and performed by Ian Prowse who composed the second best song about Liverpool ever "Does This Train Stop On Merseyside" , another opinion shared by me and John Peel. The documentary is at the bottom of the post, very interesting and entertaining.


Liver Biopsy - Not My Body (I think You Knew That)
The reason being that I've been hit by ITP twice in my life (the last time fifteen years back after  spending a night outdoors in sub zero temperatures - so I know what the homeless have to endure on nights like that) . I pointed out I'd recently had some fairly invasive stuff for my Liver Biopsy which was done in a day , but to no avail. I do feel over caution has won out in this case as I would know if the ITP had hit as I check every day for the signs.


Anyway so I'm in hospital 18th August til the 19th of August for the op so no playing out that night (not that I ever play out of course.

Outside it's pouring down so plans to mow the lawn with take a hike tonight, which means I can watch some films. Currently watching the wonderful Hugo which is Martin Scorsese's first family film, so will finish that off tonight.

So though it's raining there's lot's of great stuff going on and the weekend is here so enjoy yourselves everyone.


Friday, 13 September 2013

Fighting With My Left Hand:It's Alright Ma ... It's Only Severe Nerve Damage


...which may sound negative , but on fact it's actually very positive. The human body has a remarkable ability to just mend itself, in fact your body is continually repairing itself and you don't actually realise it. I learned that from my first brush with ITP when Juliet and Kirsty were around 4 and 2 and I was really frightened that I wouldn't see the grow up. When I was shaving and cut myself , the bleeding didn't stop , so I had to let a beard grow! Don't think the girls remember , but they were amused by it , that was around 1986.

Well I recorded me messing about on the bass, and I am trying to play some proper chords on the acoustic guitar. Electric is not an option to youtube unless I think of an instrumental to do. The thinkg is I still can't get Garageband to export a composition to iTunes, but I can record video as you can see above. The song is an extremely simple Neil Young composition "Love Is A Rose". Now this isn't about showing off or anything , it's just that a couple of months ago I couldn't hold a plate or turn a key with my left hand, now , with difficulty I can master a basic "G" chord. I've just used G,A and D and missed out the fancy bits , but I my hand is very slowly getting better.

So all in all things are improving , and the future is looking bright 


Saturday, 8 June 2013

It's Four In The Morning .. And I Feel Awful

Well it isn't it's actually 1:48 , but while trying to sleep since 8 pm last night have kept being woken up by coughing fits and an extremely sore throat coughing up some not very nice stuff. It's times like these when I get scared the ITP may come back, but last couple of times I thought it was happening I've recovered sufficiantly. Just found this ITP support site which includes an article on a (nearly) nude St Andrews Calendar , information here.

Just glad this has occurred at the beginning of my holiday at a weekend , which means , as I can't sleep, I can write this post. The fact I can write this means that I must be on the mend , last night I was only fit to drop into bed. Symptoms 'flu like aching , very sore thoat as soon as you lay down tickly cough kicks in , but you are actuallly too tired and weak to get up , but you have to to spit out the horrible phlegm to get it out of your system (swallowing is not an option).

Anyway for some reason the phrase "Four In The Morning" popped into my mind which I've just realised was a syruppy counry and western confection by Faron Young , but the one that I was thinking of was the song by Kevin Godley and Lol Creme from their triple album Consequences that they put out after splitting from 10CC (who have already featured in my June's Tunes). So here is the wonderful song , the kettle is on and I'm going to make myself a cup of tea!!

Now I've found the video , the song is actually called Five O'Clock In The Morning , memory not fully populated , it's still a fantastic song , have a listen. Just checked the albums on Amazon and they will now leave a serious dent in your pocket and there is not much available on download.




Wednesday, 27 March 2013

Fighting With My Left Hand

A few weeks ago I was in York in a brilliant Indian restaurant called The Bombay Spice (check it out if you are ever there , and i realised I couldn't hold my fork properly. Co-ordination and strength seemed to have gone. I was concerned as  this was similar to ten years back when I lost the use of three fingers to what may have been a stroke as a result of ITP which was as a result of a bad 'flu attack.

By Sunday I could hold a fork reasonably well dining in the superb Blue Bicycle . Ive been forcing myself to do things since then , but still can't really control holding reflexes and my little finger is full of pins and needles anda bit useless.

Bee messing about with a guitar as that makes you do things with your fingers , but still can't play any chord that requires a little finger , but can obviously play bass!

Reading books and taking the tops of yoghurt pots was difficult at first , but is getting better.

Finally saw my doctor at nine o'clock last night and she put me through a lot checking for signs of a stroke , nervous and diabetic related degradation but everthing looks in order so it's off to see a neurologist.

It's awkward but could be much worse . The strength is definitely there , it's just a case of relearning to apply it. Also I'm reading a rather large tome about Tony Benn and turning pages and holding the book is a bit akward.

On the upside looking forward to the summer festivals and we're close to the Easter Weekend . Which sort of reminds me I've been listening to the excellent new Eric Burdon album and currently playing is the superb "Devil and Jesus".....

"The Devil and Jesus
 Controlling My Soul
They Fight With Each Other 
But I Pay The Toll"


Wonderful stuff: